Comments on: This is My Plan, and This is What I Need http://www.fatcyclist.com/2011/03/07/this-is-my-plan-and-this-is-what-i-need/ It's like reality TV. Except it's real. And there's no TV. Fri, 04 Mar 2022 03:21:11 +0000 http://wordpress.org/?v=2.9 hourly 1 By: Fat Cyclist » Blog Archive » Grown-Up Problems Suck http://www.fatcyclist.com/2011/03/07/this-is-my-plan-and-this-is-what-i-need/comment-page-3/#comment-528997 Fat Cyclist » Blog Archive » Grown-Up Problems Suck Sat, 12 Nov 2011 14:14:15 +0000 http://www.fatcyclist.com/2011/03/07/this-is-my-plan-and-this-is-what-i-need/#comment-528997 [...] my big dream: writing (and if necessary, publishing) The Cancer Caretaker’s Companion. Check out this post for details of my grand master [...] [...] my big dream: writing (and if necessary, publishing) The Cancer Caretaker’s Companion. Check out this post for details of my grand master [...]

]]> By: Fat Cyclist » Blog Archive » Buy My Book, Fight Cancer, Win a Dream Bike http://www.fatcyclist.com/2011/03/07/this-is-my-plan-and-this-is-what-i-need/comment-page-3/#comment-527823 Fat Cyclist » Blog Archive » Buy My Book, Fight Cancer, Win a Dream Bike Thu, 03 Nov 2011 15:59:58 +0000 http://www.fatcyclist.com/2011/03/07/this-is-my-plan-and-this-is-what-i-need/#comment-527823 [...] pre-orders for that book, with the plan to use the proceeds to finance my dream: research and write The Cancer Caretaker’s Companion, a book project that’s going to require my full-time attention for several [...] [...] pre-orders for that book, with the plan to use the proceeds to finance my dream: research and write The Cancer Caretaker’s Companion, a book project that’s going to require my full-time attention for several [...]

]]> By: Fat Cyclist » Blog Archive » Comedian Mastermind: The Best of FatCyclist.com, 2005-2007 http://www.fatcyclist.com/2011/03/07/this-is-my-plan-and-this-is-what-i-need/comment-page-3/#comment-527637 Fat Cyclist » Blog Archive » Comedian Mastermind: The Best of FatCyclist.com, 2005-2007 Mon, 31 Oct 2011 02:31:12 +0000 http://www.fatcyclist.com/2011/03/07/this-is-my-plan-and-this-is-what-i-need/#comment-527637 [...] knew this was going to happen eventually, [...] [...] knew this was going to happen eventually, [...]

]]> By: Tim http://www.fatcyclist.com/2011/03/07/this-is-my-plan-and-this-is-what-i-need/comment-page-3/#comment-516131 Tim Tue, 15 Mar 2011 05:51:05 +0000 http://www.fatcyclist.com/2011/03/07/this-is-my-plan-and-this-is-what-i-need/#comment-516131 Hey Fatty, Just a question of semantics in terminology. Is "caretaker" the commonly used name for this task in USA? Here in Australia, a "carer" is a person who provides support to a sick or disabled person; a "caretaker" is like a janitor or night watchman. My wife is full-time carer of our profoundly disabled daughter; she'd be quite confused if I referred to her as a caretaker. I see some previous comments the term "caregiver"; that may be a better option for the title of your book. Good luck with it, tim Hey Fatty,

Just a question of semantics in terminology. Is “caretaker” the commonly used name for this task in USA?

Here in Australia, a “carer” is a person who provides support to a sick or disabled person; a “caretaker” is like a janitor or night watchman.

My wife is full-time carer of our profoundly disabled daughter; she’d be quite confused if I referred to her as a caretaker.

I see some previous comments the term “caregiver”; that may be a better option for the title of your book.

Good luck with it,
tim

]]> By: tang2011 http://www.fatcyclist.com/2011/03/07/this-is-my-plan-and-this-is-what-i-need/comment-page-3/#comment-516130 tang2011 Tue, 15 Mar 2011 05:46:38 +0000 http://www.fatcyclist.com/2011/03/07/this-is-my-plan-and-this-is-what-i-need/#comment-516130 I am a new cyclist , want to order the jerseys to improve up my speed , like these http://www.teamscycling.com/santini-jbg-2-2010-team-short-sleeves-cycling-jersey-and-bib-shorts-set.html but I need to check the price the quality , who can give me better advice I am a new cyclist , want to order the jerseys to improve up my speed , like these http://www.teamscycling.com/santini-jbg-2-2010-team-short-sleeves-cycling-jersey-and-bib-shorts-set.html but I need to check the price the quality , who can give me better advice

]]> By: NJS http://www.fatcyclist.com/2011/03/07/this-is-my-plan-and-this-is-what-i-need/comment-page-3/#comment-515928 NJS Thu, 10 Mar 2011 17:18:33 +0000 http://www.fatcyclist.com/2011/03/07/this-is-my-plan-and-this-is-what-i-need/#comment-515928 My dad was diagnosed with brain cancer in January 2010 and passed away September 2010. Through the eight months of treatment, primarily my mom and I provided his care. Here are some suggestions based on our experience. *How to delegate tasks that the primary caregiver no longer has time to do, or what people can do to help the primary caregivers. My family all wanted to help, but not everyone could help my dad directly. My mom and I often found it difficult to find ways for them to help and lighten our load. We didn't want to share the medical care part of it because we didn't want to get any of it confused. His treatment plan was not standard, so sometimes we had to correct the nurses in the cancer center to make sure he received correct treatment. *Some sources that may be helpful, though they are specifically for brain cancer. These pages were immensely helpful and provide good ideas of topics to cover: http://www.abta.org/Care_&_Support/Orientation_to_Caregiving/227 http://www.abta.org/index.cfm?contentid=34&itemtype=2 *Power of Attorney, medical and financial; Advance Directive; Will; Living Will *Organizational tips (scheduling, drug dosage and names (some have several names), what each drug is for, quick reference phone numbers, etc.). It took my mom and I a while to figure out what kind of organization worked for us. The beginning was rough because we had to explain to my dad several times what his treatment plan involved. If we gave slightly different stories, he got very worried that he would not get the right treatment. *Caring for the caregiver. Taking care of a cancer patient can consume a person's life and burn them out. A caregiver has to be ready for the long haul. My dad was diagnosed with brain cancer in January 2010 and passed away September 2010. Through the eight months of treatment, primarily my mom and I provided his care. Here are some suggestions based on our experience.

*How to delegate tasks that the primary caregiver no longer has time to do, or what people can do to help the primary caregivers. My family all wanted to help, but not everyone could help my dad directly. My mom and I often found it difficult to find ways for them to help and lighten our load. We didn’t want to share the medical care part of it because we didn’t want to get any of it confused. His treatment plan was not standard, so sometimes we had to correct the nurses in the cancer center to make sure he received correct treatment.

*Some sources that may be helpful, though they are specifically for brain cancer. These pages were immensely helpful and provide good ideas of topics to cover:
http://www.abta.org/Care_&_Support/Orientation_to_Caregiving/227
http://www.abta.org/index.cfm?contentid=34&itemtype=2

*Power of Attorney, medical and financial; Advance Directive; Will; Living Will

*Organizational tips (scheduling, drug dosage and names (some have several names), what each drug is for, quick reference phone numbers, etc.). It took my mom and I a while to figure out what kind of organization worked for us. The beginning was rough because we had to explain to my dad several times what his treatment plan involved. If we gave slightly different stories, he got very worried that he would not get the right treatment.

*Caring for the caregiver. Taking care of a cancer patient can consume a person’s life and burn them out. A caregiver has to be ready for the long haul.

]]> By: Sharon http://www.fatcyclist.com/2011/03/07/this-is-my-plan-and-this-is-what-i-need/comment-page-3/#comment-515923 Sharon Thu, 10 Mar 2011 15:01:09 +0000 http://www.fatcyclist.com/2011/03/07/this-is-my-plan-and-this-is-what-i-need/#comment-515923 I suggest you hold off on your search for a traditional publisher and consider publishing the book yourself. You will be the book's strongest salesperson. You can sell through your website and those of any partners you develop. You can hire an editorial/designproduction team to make the book the way you want it to be. You can line up a distributor to get it into stores and a publicity person to help get the word out. And you won't have to share the income with a publisher. I suggest you hold off on your search for a traditional publisher and consider publishing the book yourself. You will be the book’s strongest salesperson. You can sell through your website and those of any partners you develop. You can hire an editorial/designproduction team to make the book the way you want it to be. You can line up a distributor to get it into stores and a publicity person to help get the word out. And you won’t have to share the income with a publisher.

]]> By: Jessi http://www.fatcyclist.com/2011/03/07/this-is-my-plan-and-this-is-what-i-need/comment-page-3/#comment-515921 Jessi Thu, 10 Mar 2011 13:02:12 +0000 http://www.fatcyclist.com/2011/03/07/this-is-my-plan-and-this-is-what-i-need/#comment-515921 this is a great idea! can't wait to read about the process and see it come to fruition! this is a great idea! can’t wait to read about the process and see it come to fruition!

]]> By: Mike/Kamala http://www.fatcyclist.com/2011/03/07/this-is-my-plan-and-this-is-what-i-need/comment-page-3/#comment-515916 Mike/Kamala Thu, 10 Mar 2011 08:42:38 +0000 http://www.fatcyclist.com/2011/03/07/this-is-my-plan-and-this-is-what-i-need/#comment-515916 I would think you'd want a trusts and estates attorney as one of the professionals on your team. In law school I did work on end-of-life documents for folks with HIV/AIDS. Things would have been much easier on the folks who were in the end stages had they taken care of wills, kids, care directives, etc long before they started to lose their faculties. The need to address these legal issues is particularly keen for young folks who have zero documents when they get the cancer surprise. I would think you’d want a trusts and estates attorney as one of the professionals on your team. In law school I did work on end-of-life documents for folks with HIV/AIDS. Things would have been much easier on the folks who were in the end stages had they taken care of wills, kids, care directives, etc long before they started to lose their faculties. The need to address these legal issues is particularly keen for young folks who have zero documents when they get the cancer surprise.

]]> By: beth http://www.fatcyclist.com/2011/03/07/this-is-my-plan-and-this-is-what-i-need/comment-page-3/#comment-515912 beth Thu, 10 Mar 2011 05:24:08 +0000 http://www.fatcyclist.com/2011/03/07/this-is-my-plan-and-this-is-what-i-need/#comment-515912 Ask Lance for a forward or cover blurb. I know you're in the planning and research phase now, but thinking about the end product, a Lance or Livestrong endorsement or forward or even some written contribution, if he's willing, would go a long way to guaranteeing it's taken seriously and funded, although I have to think we can fund raise you to this as a community. Also look at online publishing, ebooks and the digital formats. More and more folks are going that route and it would reach a bigger audience faster, especially outside the US. 28 million patients means double to quadruple that in caretakers minimum and that seems a key target market when you're pitching this. Much needed, important and well appreciated project...thanks. Ask Lance for a forward or cover blurb. I know you’re in the planning and research phase now, but thinking about the end product, a Lance or Livestrong endorsement or forward or even some written contribution, if he’s willing, would go a long way to guaranteeing it’s taken seriously and funded, although I have to think we can fund raise you to this as a community. Also look at online publishing, ebooks and the digital formats. More and more folks are going that route and it would reach a bigger audience faster, especially outside the US. 28 million patients means double to quadruple that in caretakers minimum and that seems a key target market when you’re pitching this. Much needed, important and well appreciated project…thanks.

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